Footprints of Determination

Determined to not be so different from her peers, Ilyana an eight-year-old girl from Nahr El-Bared camp is determined to walk. 


We are taught to embrace differences but what if your difference was Myo fibrosis?  


Ilyana has been struggling since birth in pursuit of moving. She has had multiple surgeries and attends physiotherapy regularly to strengthen her muscles, stay on her feet, and even climb stairs... but some things are beyond therapy. Nadia's mom says that her main issue is being susceptible to falling flat on her face all the time. “She has limited reflexes and needs assistance all the time. This is why I’m so grateful for her friends at school who help her buy food during lunchtime and sit with her during the break. It's an immense support system to my girl.” 


Nadia further explains how tough it’s been as a family because she has yet another son who suffers from the same disease.  


“It hurts to know that my daughter won’t grow up as other girls and will be deprived of many activities as she grows. She’s smart and capable and is able to assist her own needs” Nadia chokes up.  


Specialists confirm that physiotherapy is Ilyana’s only solution to keep moving and live a normal life as much as she can. 


Therapy sessions are provided to Ilyana and about 90 children in Beddawi and Nahr El-Bared camps as part of a project implemented by Taawon in partnership with the Community Based Rehabilitation Association (CBRA), with the support of the Danish Islamic Aid (DMA). 


 

Related Posts

Life to the beat of the Derbake

Living both within and beyond a place simultaneously is precisely what Mohamed characterizes as existing in two rhythms and two distinct realm...

  • Taawon

  • August 10, 2023

Training constitutes a quantum leap in performance

Training is an essential component to ensure raising the quality of early childhood education, and this is what has been working on for years in the Early childhood education program that is supported by UNICEF. The training consists of different components as we can see in short this articl...

  • Taawon

  • July 26, 2023

Eleven out of fourteen!

This is not an arithmetic problem, but a two-digit calculation; The first is the age of Mira, and the second is the time she spent receiving treatment. In both cases, the course of treatment has just starte...

  • Taawon

  • June 09, 2023

Life inside the Palestinian Camps in Lebanon: A Cliffhanger

It’s the uncertainty of every day, the absolute sense of helplessness that leaves Palestinians hanging onto a cliff fearing the unknown. And with the frosty nights they face in Baalbak, their hands get stiffer, and their grip loosen...

  • Taawon

  • March 20, 2023